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| 1 | AN ACT concerning regulation.
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| 2 | Be it enacted by the People of the State of Illinois,
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| 3 | represented in the General Assembly:
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| 4 | Section 1. Short title. This Act may be cited as the | |||||||||||||||||||
| 5 | Caregiver Advise, Record, and Enable Act.
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| 6 | Section 5. Definitions. As used in this Act, the following | |||||||||||||||||||
| 7 | terms have the meaning given in this Section.
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| 8 | "After-care" means any assistance provided by a caregiver | |||||||||||||||||||
| 9 | to a patient after the patient's discharge from a hospital. | |||||||||||||||||||
| 10 | After-care may include, but is not limited to, assisting with | |||||||||||||||||||
| 11 | basic activities of daily living (ADLs), assisting with | |||||||||||||||||||
| 12 | instrumental activities of daily living (IADLs), or carrying | |||||||||||||||||||
| 13 | out medical or nursing tasks, such as managing wound care, | |||||||||||||||||||
| 14 | assisting in administering medications, and operating medical | |||||||||||||||||||
| 15 | equipment. | |||||||||||||||||||
| 16 | "Caregiver" means any individual who provides after-care | |||||||||||||||||||
| 17 | to a patient living in his or her residence and is duly | |||||||||||||||||||
| 18 | designated as a caregiver by a patient. A designated caregiver | |||||||||||||||||||
| 19 | may include, but is not limited to, a relative, partner, | |||||||||||||||||||
| 20 | friend, or neighbor who has a significant relationship with the | |||||||||||||||||||
| 21 | patient.
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| 22 | "Discharge" means a patient's exit or release from a | |||||||||||||||||||
| 23 | hospital to the patient's residence following any medical care, | |||||||||||||||||||
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| 1 | treatment, or observation. | ||||||
| 2 | "Entry into a hospital" means a patient's entrance into a | ||||||
| 3 | hospital for the purposes of medical care, treatment, or | ||||||
| 4 | observation. For purposes of this Act, "entry into a hospital" | ||||||
| 5 | does not require that a patient be formally admitted to a | ||||||
| 6 | hospital. | ||||||
| 7 | "Hospital" means a facility licensed under the Hospital | ||||||
| 8 | Licensing Act. | ||||||
| 9 | "Residence" means a dwelling that the patient considers to | ||||||
| 10 | be his or her home. A "residence" does not include any | ||||||
| 11 | rehabilitation facility, hospital, nursing home, assisted | ||||||
| 12 | living establishment, or group home licensed by the Department | ||||||
| 13 | of Public Health.
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| 14 | Section 10. Opportunity to designate caregiver. | ||||||
| 15 | (a) Before any patient is discharged or transferred to | ||||||
| 16 | another facility, but no later than 24 hours after a patient's | ||||||
| 17 | entry into a hospital, the hospital shall provide the patient | ||||||
| 18 | or the patient's legal guardian with at least one opportunity | ||||||
| 19 | to designate one or more caregivers under this Act. | ||||||
| 20 | (1) If a patient is unconscious or otherwise | ||||||
| 21 | incapacitated upon his or her entry into a hospital, the | ||||||
| 22 | hospital shall provide the patient or the patient's legal | ||||||
| 23 | guardian with an opportunity to designate a caregiver | ||||||
| 24 | within 24 hours following the patient's recovery of his or | ||||||
| 25 | her consciousness or capacity.
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| 1 | (2) If a patient or the patient's legal guardian | ||||||
| 2 | declines to designate a caregiver under this Act, the | ||||||
| 3 | hospital shall promptly document in the patient's medical | ||||||
| 4 | record that the patient or the patient's legal guardian | ||||||
| 5 | declined to designate a caregiver. | ||||||
| 6 | (3) If a patient or the patient's legal guardian | ||||||
| 7 | designates an individual as a caregiver under this Act: | ||||||
| 8 | (A) the hospital shall promptly request the | ||||||
| 9 | written consent of the patient or the patient's legal | ||||||
| 10 | guardian to release medical information to the | ||||||
| 11 | patient's designated caregiver following the | ||||||
| 12 | hospital's established procedures for releasing | ||||||
| 13 | personal health information and in compliance with all | ||||||
| 14 | State and federal laws; and | ||||||
| 15 | (B) the hospital shall record the patient's | ||||||
| 16 | designation of caregiver, the relationship of the | ||||||
| 17 | designated caregiver to the patient, and the name, | ||||||
| 18 | telephone number, and address of the patient's | ||||||
| 19 | designated caregiver in the patient's medical record. | ||||||
| 20 | (4) If a patient or the patient's legal guardian | ||||||
| 21 | declines to consent to the release of medical information | ||||||
| 22 | to the patient's designated caregiver, then the hospital is | ||||||
| 23 | not required to provide notice to the caregiver under | ||||||
| 24 | Section 15 of this Act or provide information contained in | ||||||
| 25 | the patient's discharge plan under Section 20 of this Act.
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| 26 | (5) A patient may elect to change his or her designated | ||||||
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| 1 | caregiver at any time, and the hospital must record this | ||||||
| 2 | change in the patient's medical record within 24 hours of | ||||||
| 3 | the change.
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| 4 | (b) A designation of a caregiver by the patient or the | ||||||
| 5 | patient's legal guardian under this Section does not obligate | ||||||
| 6 | any individual to provide any after-care for the patient. | ||||||
| 7 | (c) This Section shall not be construed to require a | ||||||
| 8 | patient or a patient's legal guardian to designate any | ||||||
| 9 | individual as a caregiver under this Act.
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| 10 | Section 15. Notice to designated caregiver. A hospital | ||||||
| 11 | shall notify a patient's designated caregiver of the patient's | ||||||
| 12 | discharge or transfer to another hospital or facility licensed | ||||||
| 13 | by the Department of Public Health as soon as possible, but no | ||||||
| 14 | later than 4 hours prior to the patient's actual discharge or | ||||||
| 15 | transfer to that facility.
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| 16 | Section 20. Instruction to designated caregiver. | ||||||
| 17 | (a) As soon as possible but no later than 24 hours prior to | ||||||
| 18 | a patient's discharge from a hospital, the hospital shall | ||||||
| 19 | consult with the designated caregiver regarding the | ||||||
| 20 | caregiver's capabilities and limitations and shall issue a | ||||||
| 21 | discharge plan that describes the patient's after-care needs at | ||||||
| 22 | his or her residence. | ||||||
| 23 | At minimum, a discharge plan shall include: | ||||||
| 24 | (1) the name and contact information of the caregiver | ||||||
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| 1 | designated under this Act;
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| 2 | (2) a description of all after-care necessary to | ||||||
| 3 | maintain the patient's ability to reside at home, taking | ||||||
| 4 | into account the capabilities and limitations of the | ||||||
| 5 | caregiver; and
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| 6 | (3) contact information for any health care providers, | ||||||
| 7 | community resources, and long-term services and supports | ||||||
| 8 | necessary to successfully carry out the patient's | ||||||
| 9 | discharge plan.
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| 10 | (b) The hospital that issues the discharge plan must | ||||||
| 11 | provide caregivers with instruction in all after-care | ||||||
| 12 | described in the discharge plan. | ||||||
| 13 | (1) At minimum, the instruction shall include:
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| 14 | (A) a live demonstration of the after-care tasks | ||||||
| 15 | performed by a hospital employee authorized to perform | ||||||
| 16 | each after-care task, provided in a culturally | ||||||
| 17 | competent manner and in accordance with the hospital's | ||||||
| 18 | requirements to provide language access services under | ||||||
| 19 | State and federal law;
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| 20 | (B) an opportunity for the caregiver to ask | ||||||
| 21 | questions about the after-care; and
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| 22 | (C) answers to the caregiver's questions provided | ||||||
| 23 | in a culturally competent manner and in accordance with | ||||||
| 24 | the hospital's requirements to provide language access | ||||||
| 25 | services under State and federal law. | ||||||
| 26 | (2) Any instruction provided under this Act shall be | ||||||
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| 1 | documented in the patient's medical record, including, but | ||||||
| 2 | not limited to, documentation of the date, time, and | ||||||
| 3 | contents of the instruction.
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| 4 | (c) The Department of Public Health is authorized to adopt | ||||||
| 5 | rules to implement the provisions of this Act, including, but | ||||||
| 6 | not limited to, rules to further define the content and scope | ||||||
| 7 | of any instruction provided to caregivers under this Act.
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| 8 | Section 25. Non-interference with powers of existing | ||||||
| 9 | health care directives.
Nothing in this Act shall be construed | ||||||
| 10 | to interfere with the rights of an agent operating under a | ||||||
| 11 | valid health care directive that was in existence prior to a | ||||||
| 12 | patient's entry into a hospital.
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| 13 | Section 99. Effective date. This Act takes effect upon | ||||||
| 14 | becoming law.
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